On gratitude - by Clare McLusky

This week's blog has been written by Clare McLusky, Trustee of Yes to Life and trained mindfulness teacher with a Masters in Mindfulness Based Cognitive Therapy from Oxford University. Today Clare shares with us some simple and helpful tips on gratitude... 

Whenever I am struggling and stressed, and life feels just plain challenging, I tend to stop doing all the things that help resource me, like exercise, mindfulness, seeing friends. It can feel hard to focus on organising or doing anything. At these times, I have discovered that doing a gratitude practice really helps and soon begins to change the quality of my day. It is a quick and easy practice to do and simply involves bringing to mind things you are grateful for that day. I find I start opening up to all the things that are good in my life and I regain my perspective.

When you are living with cancer and going through tests and treatment it can be all consuming and over-whelming and it is helpful to remind yourself of what you can be grateful for like supportive family and friends, a team of practitioners you trust in, the nurse who smiled warmly at you today and seemed to understand, the comfort of the bed you sleep in, the flowers bursting forth with colour in the garden, the birds singing. The difficulties and challenges are still there but you begin to notice the good things in your life too, particularly the small pleasures that may come your way.

Recently, I taught a mindfulness course to a group of 14 wonderful people who are living with cancer. I decided to introduce a simple gratitude practice - The Five Finger Gratitude Practice. We had a go experiencing it in the session and if you feel like it, you could give it a try now.  Just sitting here, ask yourself what am I grateful for in this actual moment? As you hold the first finger and recognise something to be grateful for, be curious as to whether there is any resonance in the body. Perhaps there is a sense of warmth, of ease or of opening. Then holding consecutive fingers find 4 more things. For me now, I am sitting comfortably for which I am grateful, I am warm, the sky is blue, the sun is setting, and the train is lulling me into a soporific state. Five things I feel grateful for. 

The invitation to the group was to do this practice at the end of each day, reflecting on what had happened during the day and feeling again the pleasure or enjoyment of it.   Some people experienced it as quite transformative “it made my whole week more pleasant”. One member found that she was beginning to “collect pleasant moments during the day”. As they continued with the practice over the 8 weeks of the course, they too felt it helped put things in perspective.

It can be helpful to aim for a Ten Finger Gratitude Practice which really pushes us to bring to mind the perhaps small and often unnoticed things that happen or the things that we take for granted, like a safe and comfortable home to live in, a warm bed, food on the table.  

The fact is that we are hard-wired to notice the negative; what’s wrong, the problems and what feels lacking. The psychologist Rick Hanson says, “attention is like Teflon for pleasant experiences and Velcro for unpleasant experiences”. The good news is that we can train ourselves to pay attention to the pleasant experiences in our lives and as we do so, we start to notice more and more positive things. As the saying goes, what you choose to focus on becomes your reality. Give it a go!

My journey with Black Salve - by Pauline Lomas

This week's blog is another from Pauline Lomas, author of And So We Heal, who beat breast cancer using no orthodox therapies and only non-invasion alternative therapies. Here she discusses her journey with Black Salve.

In 2004 whilst researching the next ‘holistic’ treatment option for the cancerous lump in my breast I came across Compound X, another name for ‘black salve’, also known as Cansema (see http://www.altcancer.com) Since I could not find any in the UK,  I ordered some from the USA with strict instructions on how to use it, and emphasis on the necessity to have good pain management and support in place.  I had read Ingrid Naiman’s wonderful book SALVES THAT HEAL, and felt prepared enough to go ahead. I was in Barcelona at the time – mid August, and sweltering (see page 156 of my book And So We heal.) Long story short – right choice – wrong timing!  The thick salve that I applied to the lump somehow melted in the heat and the result was extremely painful.  I decided then to abort the process but unfortunately I think I may have awoken the sleeping giant.  I had been trying to carry on as normal but the truth is if one is going to attempt this truly amazing treatment it is important to have support.

No regrets – that was 2004 and here we are 10 years later – I am still alive – minus one breast, but still on this long journey that has me passionate about helping to demystify the word cancer, and help herald better choices in the treatment of it.

After my ECT treatment in Malaga, Spain in 2005 I was able to get on with life. Sure I had lost most of the breast and all of my money and then some, but I was hoping that this was me done. Cancer Free – simple as that! The truth is after so many years of stringent living I was anxious to live a little. Abandoning my very strict regime, and rewarding myself with occasional treats, helped me to feel like a normal being; well as close as…..The task of committing myself to finishing a long planned book took it’s toll, and as each year passed and I missed the October ‘Breast cancer month’ deadline I would give in to stress.

By the time I finally published the book in 2009, I was exhausted and new tumour growth had invaded the chest wall.  Back to the drawing board then – My oncologist was keen to put me on Letrozole which I kept turning down – gut feelings always said no to that!

In retrospect – knowing what, and who I now know, my decision to have some surgical intervention in 2012 was a fear- based decision.  In all fairness to my oncologist, who has always been very supportive within NHS regulation, she did exactly as I had asked and left my lymph nodes intact.

Apparently the tumour had invaded the muscle so it took a fair while for my wound to heal. There was  a brief moment in time that all was well, or so I thought.  Since I had absolutely refused chemo and radiation I had to find further ways to support  my immune system with the hope of keeping further growth at bay.  The thing is – by this point research had advanced and I knew that there were other options available but I had no money….nature was my guide as always, and the seemingly never-ending journey continued…as one can see with the past blogs…

Then – as fate would have it a few weeks ago, I was introduced to Richard Linton, herbal pharmacist, www.greenwaynaturalpharmacy.com  and low and behold this wonderful soul has been working with the salve for more than 15 years.  Had I known this thirteen years ago when newly diagnosed and with one solitary lump, I may have had a chance at saving my breast.  My journey would be quite different as it happened.

Under Richard’s supervision I have embarked on yet another stage of healing, beginning with one prominent tumour that has been misbehaving.  The black salve was applied on August 6th and 2 weeks later the eschar that formed fell off.  I do have fotos which I will share at a later date.  Yes it was painful, especially the first week, but I had done my research and knew what to expect – sort of…

The good news is that I never needed pain killers and managed with homeopathic and herbal remedies, and of course my medicinal cannabis oil which is number one on my list.  Richard does not seem to be phased by the task at hand as we have quite a complex journey ahead, as we now attempt to draw the other lumpetybumps, as I like to call them through the opening left by the eschar…..I know, I know…….not easy to follow as I am hesitating actually showing fotos at this point so bear with me.  The drawing salve helps with this and is much gentler.

With the world in apparent turmoil everywhere I look, I am choosing to see it as a reflection of what’s happening in my own  body.  Yes – my chest is undergoing radical transformation – but so too the rest of me.  The aches and pains of a few months ago have gone and I am fitter in many ways than I was in my youth because of the natural food and holistic ‘medicines’ I choose to work with.  With todays emphasis on many of the failures of our health system surely it is only a matter of time before everything is privatised; so best get a jump start and stay in control of your own body as best you can.

Seeking to find the natural ways that feel instinctively right for me at this moment, I trust as always in the invisible helpers along the way.  Thank God that there are so many like-minded people doing much the same and by the graces we are drawn together to make things better.  Slowly but surely the portals seem to be opening wider and I am so grateful to still be alive and kicking and allowed access to this realm of magical living.

…………..And guess what – yesterday I arrived back from 2 days in Yorkshire where I had all my mercury fillings removed painlessly and holistically by yet another grand soul! More on that in the next blog…..with a bit of luck I can post this before September clicks in!  Keep the faith dear ones and leave no stone unturned…..YOUR HEALTH IS YOUR GREATEST TREASURE!

Supplements: Gimmick Or Good For You? - by Lauren MacDonald

This week's blog is another from Lauren MacDonald, a 29 year old junior doctor when she was diagnosed with stage IV cancer, who is now celebrating one year NED. Here she discusses her thoughts on supplements...

I was incredibly anxious when I was first diagnosed with cancer and was keen to exert some control back over the crazy world I’d found myself in. One of the first things I did involved going shopping for supplements. I figured that if there was anything I could buy over-the-counter to support my health, it was my duty to buy it. At one point I was taking over 25 different supplements everyday. That may sound excessive, but apparently increasing amounts of us are taking vitamin pills and herbal supplements with the aim of protecting ourselves against all manner of health problems. In the UK the market is currently worth £650m, with approximately 40% of us now popping a pill or two each day. The industry is phenomenally powerful, extremely lucrative and incredibly influential. But should we be taking all these supplements?

Gimmick or Good For You?

The supplement industry is divided into three groups: (1) vitamins; (2) minerals such as zinc, copper, selenium and iron; and (3) dietary supplements such as fish oils, herbs and spices. I went out and invested in various tablets and powders from across these different groups. This was despite my medical knowledge regarding how supplements are likely used by the body. From what I’ve been taught it seems that our bodies are not particularly efficient at digesting, processing, and absorbing supplements in pill form. When you take a pill it first travels to the stomach, where it breaks apart and releases the nutrients it contains. These are then absorbed and processed (usually by the liver), from where only a fraction of the nutrients then go on to enter into the bloodstream. Consequently it’s likely that plenty of supplements actually end up in your urine.

Another issue is that even if your body can absorb some of the nutrients, there is often limited scientific evidence available to support the use of many supplements. Having said that, this is often due to an absence of any proper scientific testing. In this situation all anyone can do is speculate about whether there are any benefits to be gained. Because of this, at the time of my diagnosis I was more than happy to buy my supplements under the caveat that “the scientific proof possibly just hasn’t been confirmed yet”. In my eyes being a guinea pig was far better than sitting back and doing nothing. Plus several friends offered up stories about their distant relatives/friends/neighbours who had cured their cancer by taking a concoction of supplements.

My Experience With Supplements

On reflection I’m sure that as a GP I wouldn’t have been overly enthusiastic about any of my patients taking 25 random pills every day. But back then, my rational “doctor voice” was drowned out by my petrified “patient voice”. I eventually got to a point where I couldn’t walk past a health food shop without diving in to buy the latest “cancer killing” or “immune boosting” supplement. My cupboards were full of spirulina powders to add to my juices, and chaga mushroom granules, dried cleavers, and pau d’arco to make up as teas. The supplements I was taking ranged from standard multivitamins and fish oils, to more unusual supplements like milk thistle, astragalus, and sea kelp. I was probably taking them regularly for about 6 months; right up until until the cancer came back.

Around the time I progressed to having stage 4 cancer (meaning that the cancer had spread to my chest from my leg), some new evidence was published which scared the bejesus out of me. Two studies had found evidence that taking supplements may actually increase the spread and severity of some cancers (specifically melanoma and lung cancer). Overnight my 20 supplements didn’t seem so “life saving”. Obviously this research was only preliminary, but it was enough to make me consider that maybe I shouldn’t be taking quite so many supplements, especially without having mentioned them to my oncologist.

Do You Need Supplements?

If I’m truly honest, I’m really unsure. From the research I’ve read it would seem that the answer is no. The problem is that it’s almost too easy to get your hands on supplements. These days there is a pill available for absolutely anything. Whether you have trouble sleeping, want to lose weight or get more of a certain vitamin into your body, there is a wide range of aids to choose from. Recently several studies have taken place to attempt to justify the use of vitamin and mineral supplements but the majority of them have come to the same conclusion – there is no concrete evidence to suggest that dietary and nutritional supplements have any real positive impact on health. Scientifically speaking there are no miraculous supplements that will help you find solutions to multifaceted health problems – especially not cancer. But it’s easy to fall for marketing promises and personal success stories.

Luckily it’s pretty easy to get everything you need just by eating a balanced, healthy diet and going outside every once in a while. Other than perhaps vitamin D, you don’t actually need to load up on extra amounts of these compounds. And in some cases you can actually overdose. For example, excess vitamin A in the body can cause blurred vision, dizziness and bone softening. However, there are some instances when certain supplements become necessary. For example, very strict vegetarians may need supplementary vitamin B12, and those who are pregnant or breastfeeding should consider vitamin D and folic acid.

My New List:

Two years ago, along with adding in a huge amount of supplements, I also gave my diet an overhaul. Although I have relaxed a little, I still eat a largely plant based diet and it is mainly through food that I now nourish my body – not supplements. My diet now includes more specific food items, such as, nuts and seeds, pomegranates, shiitake mushrooms, fermented foods, fresh turmeric, bee pollen, watercress, parsley, green tea and a whole host of other random bits and bobs which potentially have “immune boosting” or “cancer fighting” properties. Although I haven’t completely stopped all supplements, I am weary of taking too many. I am having regular infusions of Pembrolizumab (immunotherapy) and the last thing I want to do is cause any interactions, or prevent my wonder drug from doing it’s thing.

So…. what made my list?

(1) Vitamin D

Vitamin D helps to control the amount of calcium and phosphate in our bodies. Both are needed for healthy bones, teeth and muscles. Very few foods contain vitamin D (and those that do, such as milk and orange juice, are fortified). We tend to get most of our vitamin D from sun exposure, but in winter this can be problematic.

(2) Omega-3

Omega 3 helps protect against diabetes, heart disease and stroke, as well as providing support for brain health and memory. Found in oily fish such as salmon and tuna, many of us are deficient in omega 3 as we just don’t eat enough in our diet.

(3) Probiotics

I have an entire blog post dedicated to my love of probiotics and gut health in general. I cannot rave about them enough! Take a look at the post here.

(4) B Vitamins

B12 is an essential nutrient needed for nearly every bodily function and energy production. Low levels can cause damage to the nervous system and some of the early signs of deficiency are chronic fatigue, moodiness, and even dementia-like traits. Because the body cannot produce it on its own and it’s also scarce in our food system, it is advised for those with low levels to take a B12 supplement.

And that’s it.

From 25 supplements down to 4. It may seem simple but there it is. If you are taking care of yourself and eating a healthy balanced diet then if you ask me, these are the only supplements you should consider. Having said that, although I’m a qualified doctor, I’ll be the first one to put my hands up and admit we didn’t learn a huge deal about nutrition during our medical degree. To be honest I feel like I’ve taught myself a great deal more about nutrition and supplements since I was diagnosed with cancer. Because of this, I’d just like to highlight that the above information is my opinion only, and does not necessarily represent that of the wider medical community. I’d love to hear from any registered nutritionists or dieticians if you feel that I’m way off the mark with my opinion on supplements. I’m open to learning new things!

Lauren x

Please remember that it’s always advisable to seek professional advice before taking supplements anyway. Speak to your GP before you introduce anything new, especially if you take regular medication.

You can read more inspirational and informative posts on Lauren's blog www.laurencara.com.

Is There A Role For Diet In Cancer Treatment? My Opinion And Personal Experience - by Lauren MacDonald

Following the popularity of her previous blog, we have another post from Lauren MacDonald, a 29 year old junior doctor when she was diagnosed with stage IV cancer who is now celebrating one year NED. Here she discusses the role of diet in cancer treatment from her own personal experience.

Over the past few years I’ve received countless emails from people asking exactly what diet changes I’ve made since I was first diagnosed with cancer (in Feb 2014). Although it’s true that I’ve made certain changes, I’m always a little cautious about sharing them, mainly in case people think that because I’m a doctor that must mean the specific changes I’ve made are based on overwhelming scientific evidence. Although I’ve researched “cancer and nutrition” in detail, trawling through countless medical journals and review papers, I’m still not an expert in this field or a qualified nutritionist. Additionally, from what I’ve come across, there is still very little scientific evidence supporting the use of specific diets in cancer treatment anyway. The changes I’ve made to my diet have largely been in an attempt to nourish my body as much as possible, boost my immune system, and (*potentially*) help my body to fight cancer cells.

The Problem With Extreme “Cancer Diets”

Don’t get me wrong, for a little while right at the beginning, I definitely did get sucked into the idea that certain foods or diets might be able to rid me of cancer. I was guilty of dabbling with a few questionable/ridiculous diets (anyone for ground flaxseeds mixed with cottage cheese??!) but fortunately it wasn’t long before the medic inside of me woke up and put a stop to my nonsense. Yet the fact that I was sucked in at all shows just how easy it is for common sense to go AWOL when faced with cancer. For most cancer patients, changing their diet is as much a mental process as a physical act. It enables you to feel like you’ve got some control over a petrifying situation and I know I also felt comforted by the idea that nature might, just might, “cure all” (rather than toxic chemotherapy or other drugs).

Additionally there’s simply so much information available on the internet about “diet and cancer” that it’s almost impossible to avoid it as a newly diagnosed patient (who can often be found googling “cancer cures” at 2am). Without randomised controlled trials in this area (of which there have been very few – although I’m currently awaiting the results of an interesting one looking at watercress) it is difficult to separate fact from fiction. Ultimately, this can leave us patients, our friends and our families confused and vulnerable to inaccurate (and sometimes downright dangerous) information.

Cancer And Certain Diet Myths

The alkaline diet is one of the most popular “anti-cancer” diets. Fans of this diet believe that an acid diet encourages cancer formation, and that an alkaline diet is therefore the solution. The reason that acidity is seen as an issue is because while healthy cells get the majority of their energy from oxygen respiration, cancerous cells tend to inefficiently use glucose at a higher rate than healthy cells. This consumption of glucose results in acidic waste products, and consequently a higher acidity around cells which use this mechanism. BUT… THE FACT IS THIS: acidity is a consequence of the cancer rather than the cause. Therefore, an alkaline diet CANNOT affect cancerous cells. This is because tissue acidity is tightly regulated by our incredibly clever bodies (because otherwise we would die) and this cannot be altered simply by changing the food you put into your mouth.

Another anti-cancer diet I’ve seen tooted time and time again is the “no sugar diet“. Although there’s an established link between being obese or overweight and developing certain types of cancer, the suggestion that sugar “feeds” cancer is an over-simplification of some complicated biology. Yes it’s true that glucose is a sugar, but it is one required by every cell in the body to function, whether cancerous or not. Ultimately all carbohydrates, whether from vegetables or chocolate, are broken down to glucose for the body to then utilise for energy. The reason that the “no sugar diet” has become so popular is because cancer cells require sugars to grow – and their glucose intake is a lot higher than that of healthy cells (this is known at the Warburg effect). The hyperactive glucose consumption of cancerous cells results in a vicious cycle of continued stimulation of cancer development. However, all the cells in the body require “sugar” to survive so it’s impossible to rid yourself of glucose, no matter what you eat. There’s also no evidence that proves eating a low-sugar diet cures cancer.

The final diet which has limited evidence for curing cancer is the ketogenic diet. The ketogenic diet is a high fat, low carbohydrate, and typically a protein-restricted diet. Normally what we eat is composed of macronutrients: carbohydrates, proteins, and fats. The carbohydrates are things like bread, pasta, cakes and some of the fruits and vegetables that we commonly eat. Protein is found mainly in meat and dairy products. High-fat foods are things like bacon, peanut butter, creams, avocados, coconut milk etc. The average diet is about 50-75% carbohydrates and, thus, this is the energy currency that our bodies use. Contrasting with this, in a ketogenic diet about 90% of what a person eats is fat. There is very little protein and almost no carbohydrates. This simulates a fasting state in the body where instead of carbohydrates being used, the body uses ketones for energy. Some people claim this altered state can starve cancer, yet, there is very little evidence to support this idea (except perhaps for patients with brain tumours but, once again, the evidence is limited). There is some evidence, however, that a ketogenic diet can reduce inflammation in the brain and can help treat strokes and other neurological conditions like epilepsy. Among theories about the mechanism behind the ketogenic diet is that the mix of high-fat, low carbohydrates, and reduced protein intake may reduce firing of excitatory brain cells that can make the brain vulnerable to seizures. Unfortunately implementing this diet is a huge undertaking. It can incredibly challenging (and a little disgusting) to force such high fat foods into your body on a daily basis. I know my brother and his girlfriend tried the ketogenic diet as part of a study during her degree (Nutrition BSc) and they couldn’t maintain it for more than a few weeks.

How I Changed My Diet After My Diagnosis

During the first 12 months after I was diagnosed I went ALL OUT with my diet. I stopped eating anything sweet (chocolate, cakes, ice cream etc), juiced as though my life depended on it (daily – if not twice a day – so at least I got my moneys worth from my ridiculously expensive masticating juicer – it’s an Omega Vert in case you were wondering), added ground flaxseeds to everything, nibbled on raw garlic, made myself eat shiitake mushrooms with nearly every evening meal (despite not liking the texture), and washed all these foods down with gallons of green tea and chaga mushroom coffee. Then the cancer returned, making me a stage IV cancer patient, and I figured my mostly plant-based, highly restrictive diet wasn’t eliminating cancer cells and also wasn’t making my life that much fun. To add insult to injury I was also spending a fortune on my “anti-cancer diet”.

Given that my experiment didn’t “cure” me of cancer, I eventually relaxed my diet and simply integrated a few of my new healthy habits into my daily life. Fortunately, somewhere along the way (about four months after starting immunotherapy), I slowly began to journey from a stage IV cancer patient with aggressive tumours that kept popping up in various parts of my body, to someone with No Evidence of Disease.

What I Eat Now

I’ve pretty much reverted to eating exactly like I did before I got cancer. If I fancy a pizza, I have a pizza; if I fancy a bowl of ice cream, I eat the ice cream; if I fancy wine, I’ll have (red) wine (which apparently has anti-cancer properties anyway). Having said that, I now let myself be guided by what my body wants (I guess thats what people call “intuitive eating“) and my body invariably wants to be fed healthy, nourishing foods. The things I make sure to eat include:

Leafy Greens

Isothiocyanates (ITCs) found in leafy greens have been reported to help the body at a cellular level. The main ones I’ve added in to my diet (pretty much every day in a green juice) are kale, spinach and watercress. In addition to isothiocyanates, cruciferous veggies like broccoli also contain sulforaphanes and indoles – two types of antioxidants that protect the structure of DNA. The evidence is so strong that a pharmaceutical company in the UK, Evgen Pharma, is now designing drugs using sulforaphane. The drugs have been shown to kill cancer cells and improve the prospects of stroke patients.

Berries

Most mornings I have a handful of blueberries, raspberries, strawberries and pomegranate seeds, mixed with a spoonful of greek yogurt, a drizzle of almond butter and some mixed seeds. The ORAC scores of nearly all berries are very high, making them some of the best antioxidant foods.

Orange Foods

I make sure I eat plenty of carrots and sweet potatoes (carrots in my daily juices and sweet potatoes as wedges). This is because there’s some evidence that the beta-carotene found in orange foods is an essential nutrient for immune functioning, and given that I’m on an immune-boosting drug, it seems logical to try and give my immune system a helping hand with these foods.

Mushrooms

Several studies have linked higher mushroom intake to a reduced risk of breast cancer in premenopausal women. It has also been proposed that various mushrooms, such as shiitake, chaga, turkeys take and lion’s mane, may also help fight cancer. However, there is still no conclusive evidence that any type of mushroom can prevent or cure cancer.

Spices

The jury is still out on whether turmeric and ginger are “potent anti-cancer foods” but I still add them to all my juices. Make sure you add some black pepper to help with turmeric absorption.

Fermented Foods

Gut health! My favourite subject 🙂 Most of my blog posts seem to have been dedicated to this subject so I won’t go into too much detail here. The main foods I’ve kept in my diet are sauerkraut, kefir, apple cider vinegar, and cultured yoghurt. I try and have at least two of these foods everyday.

Nuts/Seeds

Have you tasted Pip and Nut’s Almond Butter? Not only is it pretty much the most delicious thing you will ever taste, it’s also a great source of protein, fibre and healthy fats. I also try to make sure I have a few brazil nuts every day as they are a great source of selenium.

Udo’s Choice Oil

I try to add a few tablespoons of this oil into my food at some point during the day (either on my breakfast, drizzled on salads or simply neat if I’ve forgotten to add it to a meal – it doesn’t taste too bad). This oil has the ideal ratio of Omega-3:Omega-6’s. I also try to get plenty of Omega’s by eating oily fish a few times a week. Omega-3 fatty acids exert anti-inflammatory effects and might help the body to fight cancer.

Matcha Green Tea

Matcha contains the highest percetange of polyphenolic compounds (catechin, gallocatechin and EGCG). EGCG has been reported to be linked to the modulation of multiple signaling pathways, finally resulting in the downregulation of expression of proteins involved in the invasiveness of cancer cells. It’s an acquired taste but I’ve grown to love it. Pukka Teas do a mild version that comes in teabags if you can’t handle the intensity of the powdered form.

The Take Home Message

I know this is really boring and not what you want to hear, but there really isn’t any one diet or food that will “cure” cancer. If there is (and I’m yet to come across it in my research) please, please let me know…

Using nutrition to support cancer treatment basically boils down to the age-old adage of eating a well balanced diet, enjoying your food, and not eating too much junk. The reality is that cancer is complex illness, and simple “cures” shared online should be treated with scepticism. Having said that, I truly believe that eating healthily has a role in cancer treatment – I just don’t think it will provide the sole “cure”. Personally I didn’t ever receive any diet advice from my healthcare team during my “cancer journey” and apparently this is not uncommon. This lack of nutritional advice for cancer patients in the UK needs to be addressed. In my opinion, we need a holistic approach to treating cancer and nutrition (along with exercise and stress reduction techniques) should be as much a part of cancer treatment as medicine and surgery.

I hope that this info helps anyone who is currently going through cancer treatment or just wants to live a healthier life. Remember, I’m not an expert in this field – these are just diet changes that felt right for me.

Organisations like Cancer Research UK have patient guides that are worth checking out for reliable information. Unfortunately, they aren’t as sexy as those offered up by online “wellness gurus” – but at least you know they’re based on real facts rather than far-fetched theories.

You can read more inspirational and informative posts on Lauren's blog www.laurencara.com.

Life Beyond Stage IV: Celebrating One Year NED! - by Lauren MacDonald

This week's blog is by Lauren MacDonald who was a 29 year old junior doctor when she was diagnosed with stage IV cancer. She wanted to share her story to inspire our followers to not give up hope, and to keep looking for alternative ways to support their health and wellbeing.

Hello friends!

Sorry I’ve been AWOL for the past few months.

After becoming completely exhausted whilst working full time in the hospital this summer, I decided to give myself another career break for a few months (until I finally finish cancer treatment at the end of 2017). Despite the blood, sweat, tears and shingles, I’m pleased I went back to work when I did as it finally enabled me to complete my F2 training and now puts me in a position to locum as and when I have the energy. In the meantime I’ve been enjoying a mixture of relaxing down-time along with embracing my new ticket to worldwide travel (my yoga teacher qualification) – plus still having treatment at The Royal Marsden every three weeks.

My Recent Adventures

Sri Lanka

Just to get you up to speed on the past few months… For those of you following my Instagram account (dr_laurencara), you’ll have seen I shared my recent stay at Sen Wellness Sanctuary in Sri Lanka. Although the sanctuary is primarily a kundalini yoga and ayurvedic centre, the lovely owner Sam, who has become a dear friend over the past few years, invited me out to experience the retreat but also practice teaching vinyasa/yin styles of yoga. Below are a few photos from my trip – the first one being of my beautiful friend and kundalini teacher, Candace, who I learned so much from during my time at the sanctuary. If anyone is currently stuck in a job that no longer serves them, if you are stressed and exhausted and feeling empty – just take a look at this stock-broker turned kundalini teacher for inspiration!

After a month in this beautiful healing setting I can honestly report I felt healthier and more energised than I have in years. The food was amazing, the people were inspiring and the energy within the sanctuary itself was pretty incredible. I can’t recommend the experience enough.

Portugal

After my trip to Sri Lanka I returned to London for a busy week of CT scans and treatment. Fortunately my scan was once again clear – pushing me beyond the one year NED mark! (yay!). Following this wonderful news I then spent a wholesome week at Vale De Moses, a secluded yoga retreat in the foothills of Portugal. The combination of eating fresh vegetarian food, practicing yoga daily, embracing a slower pace of living, and having limited wifi provided me with another chance to fully rest and recharge in the most beautiful setting.

Cornwall

My final adventure involved joining my friend, Julia, for her first ever yoga retreat down in St Ives. The five day retreat run by Julia and Jo (the team behind By The Sea St Ives) was a combination of vinyasa and yin yoga, nutritious, wholesome food (plus a little bit of wine), surfing, and hiking. I was also invited to speak to the guests about Gut Health which I absolutely loved.

What can I say… the last few months have been pretty epic!

Celebrating One Year Of No Evidence Of Disease

Although I didn’t throw any kind of one year “cancer free” party (or celebrate in any way come to think of it), I think you’ll agree that I’ve been busy living life to the full and celebrating in my own way. I’ve also finally started to make plans for 2018, something I’d have never have done during the first year after my stage IV diagnosis.

Back then the average survival for patients with stage 4 metastatic melanoma was still considered to be less than a year – due to it being a notoriously aggressive and chemo-resistant form of cancer. In fact just a few years ago, maybe just one in 20 patients with stage IV would survive beyond five years. Therefore I found myself living life in three month blocks between my scans. I found it easier to try and live as mindfully as possible, living each day as though it was my last. As soon as I started worrying about the future I’d immediately ruin the present moment.

None Of This Would Have Been Possible Without Immunotherapy!

Despite the abysmal statistics for stage IV melanoma patients during the past few decades, the statistics are finally starting to be re-written and that’s all down to immunotherapy. Pembrolizumab, the drug I’ve been receiving for the past 18 months, is one of the first generation of immunotherapy drugs. It was designed to release the “brakes” that inhibit the immune system from attacking cancers. In the early trials 24% of patients diagnosed stage IV had an overall response to therapy (meaning tumours partially or completely shrank). Fortunately, that’s exactly what happened to me. After my 6th infusion (around 4 months into treatment), several large visible tumours beneath the skin on my chest began to shrink. By my second set of scans – around 6 months into my 2 years of treatment – all the tumours in my body were gone.

Celebrating NED (Rather Than Being “Cured”)

The reality is that while the cancer is no longer detectable, it’s certainly possible that traces of the cancer remain and could potentially return one day in the future. I think I’ll forever be slightly concerned about the fact cancer cells may have crossed into my brain, largely because of a swollen lymph node at the back of my head which appeared just before I started treatment (and then later disappeared). But I guess for now we can say I’ve been in “complete remission” for over a year – which is pretty bloody amazing especially given the situation 18 months ago.

Just to clarrify:

• Cure means that there are no traces of cancer after treatment and the cancer won’t come back.
• Remission means that the signs and symptoms of cancer are reduced. Remission can be partial or complete. In a complete remission, all signs and symptoms of cancer have disappeared.

Obviously the hope with immunotherapy is that when your body has learned to identify your form of cancer, it remains vigilant against it. This seems to be the case for the growing number of patients who have had progression-free survival following immunotherapy. This summer results were published showing 42% of subjects with metastatic melanoma who received pembrolizumab were still alive four years into the study (and the study is ongoing). Some 13% of the subjects who received my drug had a “complete response” (like me).

Remaining Side Effects

I feel like I’ve had a pretty easy ride with my treatment compared to many cancer patients. My only real symptoms have been that I get very tired sometimes and I’ve developed vitiligo on my neck and jaw. And that’s it. However, immunotherapy is far from a guaranteed “get out of side effects free” card. My course of treatment has gone relatively smoothly, but the side effects for some – from fever to colitis to pancreatitis – can be so severe that they’re unable to continue treatment. Additionally not everyone repsonds and in some rare cases people die from the side effects of the immune system being ramped up and going out of control. Just this summer trials were halted in which pembrolizumab was being tested in conjunction with some other immune-boosting drugs to treat multiple myeloma – citing an increased risk of death.

Boosting Immunotherapy

The other side of this coin is that some patients don’t respond to immunotherapy and scientists are now trying to work out what is it about the subsets of patients who respond that makes them different. Obviously it probably depends largely on the extent and spread of disease at the time of starting treatment, but it also appears to involve other factors. One of these factors might be my favourite subject on this blog – gut health.

Gut Health And Immunotherapy

Earlier this year the results of the first study looking at the relationship between the gut microbiome and immunotherapy response in patients was published. Gopalakrishnan et al. found that those who responded to a PD1 checkpoint inhibitor (my drug) had a greater diversity of gut bacteria and larger volumes of a specific type of bacteria than those who did not respond. I know I write about this subject all the time across my blog, but please, please, if you are a newly diagnosed cancer patient take the time to do everything you can to support your gut health (from certain dietary changes to adding in a daily probiotic, or even considering a 12 week programme). You never know – it might make the difference between responding to treatment or not.

The Future Of Cancer Treatment

Recent clinical trials and research continue to show that immunotherapy holds promise for other forms cancer, including breast, lung, ovarian, pancreatic and myeloma. However, not all cancers or patients respond to this treatment. Fortunately another emerging area of research is CAR-T cells. This is when scientists genetically engineer a patients T-cells (the fighters of the immune system) to home in on the patient’s cancer and then grow millions of the modified cells in the lab. When the cells (now called chimeric antigen receptor cells, or CAR-T cells for short) are returned to the patient, they are much better equipped to hunt down and kill the cancer cells. Basically, we are seeing a new generation of cancer treatments that harness the body’s own innate cancer-killing machinery – how cool is that?!

My Future

Right now I have some very loose plans for the latter part of 2017 and 2018 – but nothing is firmly set in stone. I think a huge lesson I’ve taken away from this experience is learning to live each day as it comes and not take anything for granted. I doubt I’ll ever go back to making a “5-year plan”, simply because none of us ever know what is round the next corner.

Wishing you all lots of health, healing and happiness.

Lauren x

You can read more inspirational and informative posts on Lauren's blog www.laurencara.com.

Inspired Nutrition and Yes to Life take on Brighton

Today’s post is about our recent Cookery Well-being workshop which took place at Brighton Cookery School last Saturday. The morning was hosted by the wonderful Jenny Philips and Jeraldine Curran of Inspired Nutrition who brought a whole load of tasty recipes, years of expertise, a sunny vibe and plenty of jovial flair to the kitchen. If you missed it we are running two more workshops with Jenny and Jeraldine this year, keep up to date with our events calendar for more info.

Think of that person in your life who has cooked for you, gathered fresh ingredients, laboured over chopping boards and stoves with the passion of nurturing you: a mother, grandmother, sibling, friend, partner…then you have some impression of what it felt like to walk into Jenny and Jeraldine’s kitchen. These women are not professional chefs but they are something far more important, cooks who understand the power of food to heal, support and protect.

Although they are both qualified nutritional therapists, it is Jenny and Jeraldine’s personal experiences as much as any qualifications, which make them both such incredible fonts of knowledge.  Jenny recovered from breast cancer ten years ago and Jeraldine has been a close support for family members with cancer so they both understand the topic inside out and were happy to share their stories. The selection of dishes they prepared were designed to support the body through any stage of cancer diagnosis, and it was possible to tailor each to specific requirements…they were also delicious!